Disclosure of Stuttering and Quality of Life in People who Stutter

Authors

Michael Boyle, Montclair State UniversityFollow
Kathryn M. Milewski, Montclair State University
Carolina Beita-Ell, Montclair State University

Document Type

Article

Publication Date

12-1-2018

Journal / Book Title

Journal of Fluency Disorders

Abstract

Purpose: This study investigated the disclosure practices of people who stutter, and the relationship between disclosure of stuttering and quality of life. Method: Participants were 322 adults who stutter recruited from speech-language pathologists and support group leaders. Participants completed a survey that contained items measuring level of disclosure of stuttering, as well as a global measure of self-rated quality of life. Participants were grouped into low, average, and high quality of life subgroups. Analysis of variance tests compared disclosure levels among these subgroups. Results: The low quality of life subgroup reported significantly lower levels of disclosure compared to both the average and high quality of life subgroups. Participants with self-help/support group experience for stuttering demonstrated significantly higher levels of disclosure of stuttering compared to individuals without such experience. In addition, a substantial number of participants in the overall sample reported that they more than rarely feel the need to conceal stuttering from others (40%), and that no one knows that they stutter in many areas of life (37%). Conclusions: Attempts to conceal stuttering in at least some life situations are not uncommon among adults who stutter. However, being involved in self-help support groups may be a helpful way of increasing disclosure of stuttering. Speech-language pathologists should become aware of the positive relationship between disclosure of stuttering and quality of life and its relevance in assessment and treatment when working with people who stutter.

DOI

10.1016/j.jfludis.2018.10.003

Montclair State University Digital Commons Citation

Boyle, Michael; Milewski, Kathryn M.; and Beita-Ell, Carolina, "Disclosure of Stuttering and Quality of Life in People who Stutter" (2018). Department of Communication Sciences and Disorders Faculty Scholarship and Creative Works. 30.
https://digitalcommons.montclair.edu/communcsci-disorders-facpubs/30

Published Citation

Boyle, M. P., Milewski, K. M., & Beita-Ell, C. (2018). Disclosure of stuttering and quality of life in people who stutter. Journal of fluency disorders, 58, 1-10.